Parent Resources

Down Syndrome Resources

Jacks Basket

Jack's Basket provides support to families from diagnosis through baby’s 1st birthday. They focus on three primary activities:

  • Engage and equip medical providers with tools necessary to talk about Down syndrome appropriately, and without bias.
  • Connect new parents with other families and additional resources through the basket delivery program.
  • Share impactful and inspiring stories to change the narrative surrounding Down syndrome.

Down Syndrome Diagnosis Network

The Down Syndrome Diagnosis Network shares accurate information with parents - and the medical professionals who serve them - from the time of diagnosis through age 3 with a vision that "every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time" while fostering the opportunity for lifelong connections.

National Down Syndrome Society

NDSS is committed to offering no-cost resources through events, videos, and publications on a topics like health and wellness, education, employment, adulthood and  financial wellness. In addition to providing information for new and expectant parents, our staff responds to questions and connects individuals with Down syndrome, family members, professionals, and others with referrals to our network of more than 300 local Down syndrome organizations.

Zoe’s Tool Box

"Tool boxes" are filled with developmental therapy tools to aide in gross fine motor skill development along with sensory toys geared towards children 6 months - 2 years of age. They help to empower parents with resources that supplement professional therapy regimens, to assist with things like speech, feeding, and physical therapy.

Dear Mom

Dear Mom, is focused on connecting moms raising people with Down syndrome to build friendships that provides one of the strongest tools one can have on their journey. The Dear Mom, Conference is a way for moms to "pave new paths for seeking hope, finding your voice, and leaving your fears behind."

Congenital Heart Disease (CHD) Resources

Mended Little Hearts

Mended Little Hearts provides resources and impactful education to heart patients and their families. MHI empowers patients and families with educational programs designed to enable them better decisions about their healthcare and improve quality of life.

Conquering CHD

Conquering CHD is focused on conquering the most common birth defect. They work to fund research, raise awareness, educate the community, and highlight and empower those impacted by CHD.

Childhood Cancer Resources

Pinky Swear Foundation

The Pinky Swear Foundation provides financial support to families fighting childhood cancer. The work to ease the burden of the cost of housing, transportation, and food.

Be Positive (B+) Foundation

The B+ Foundation is the largest provider of financial assistance to families of kids with cancer in the US, helping over 3,800 families this year. They also work to fund vital, cutting-edge research on childhood cancer and provide support to families of children with cancer nationwide.

Team Tucker

Team Tucker provides opportunities to Play, Laugh, and Love and renew strength to those children battling life-threatening illnesses.   through scary, painful realities.  They help children and their families by providing visits from family and friends, getaways for the child and their family if treatment allows, and surprise gifts for the patient.

Alex’s Lemonade Stand

Alex’s Lemonade Stand Foundation offers many programs and tools to help families navigate the challenges of having a child with cancer.

Alex’s Lemonade Stand Foundation focuses on changing the lives of children fighting cancer by funding leading-edge research. They are driven to raise awareness and help families dealing with childhood cancer, and to inspire everyone to help cure childhood cancer.

Additional Medical Resources

Vascular Birthmarks Foundation

The Vascular Birthmarks Foundation  networks families affected by vascular birthmarks, anomalies, and/or related syndromes (VBARS) to the appropriate medical professionals for evaluation and/or treatment around the world. They provide informational resources and sponsor physician education. The foundation organizes medical missions trips, and funds research, and supports programs to promote acceptance for those with birthmarks.

Family Reach

Family Reach we believes that no family should be forced to choose between vital medical care and food, housing, and transportation. They work to provide financial support to those undergoing cancer treatment. They believe that making financial assistance part of cancer care, the playing field is leveled and health outcomes will improve nationwide.

Hope for HIE 

Hypoxic Ischemic Encephalopathy (HIE)

Hope for HIE is the largest world-wide collective of resources, support, help, and families for HIE. This extremely active and engaged community is passionately devoted to giving thorough, personalized support for each family’s journey.


A-T Children’s Project

Ataxia Telangiectasia

A-T Children's Project works to drive innovative, international research and develop potential therapies for ataxia-telangiectasia (A-T). They strive to improve the accurate and timely diagnosis of A-T patients by increasing public awareness and educating physicians, in addition to sponsoring a multidisciplinary clinical center to discover quality of life improving therapies, and a cure A-T.