heart defect

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Go Red in February for CHD

By Josie / January 25, 2022
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Congenital Heart Defects (CHD) effects every 1 in 100 babies born, making it the most common birth defect. Having a CHD is 60x more common than childhood cancer but gets a fraction of the funding for research. That’s why I am selling bracelets and donating all the profits to a local non-profit called Project Bubaloo.…

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Guiding Questions for Appointments

By Josie / July 27, 2021
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After hearing that Maya had a congenital heart defect, the searching for answers began! We got paired up with a wonderful cardiologist at Children’s Hospital of Wisconsin where we got answers to our most pressing questions. Throughout my pregnancy, there were many more questions after every fetal echo and I have tried to distill them…

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Just the Two of Us (or Three!)

By Josie / June 29, 2021
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This is hard to admit but I remember after Mayas’ diagnosis, crying and feeling sad that Ryan and I would never be empty nesters, and get the chance to travel together just us two once the kids were grown. I remember Ryan holding me and saying, “but just think, well get to show our baby…

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