This photo breaks my heart every time I see it. I took this picture two days before Maya needed her third open heart surgery to fix her AV Canal defect. She was born with only three chambers in her heart and only one valve instead of two, the tricuspid and mitral valve. Usually this CHD…
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Congenital Heart Defects (CHD) effects every 1 in 100 babies born, making it the most common birth defect. Having a CHD is 60x more common than childhood cancer but gets a fraction of the funding for research. That’s why I am selling bracelets and donating all the profits to a local non-profit called Project Bubaloo.…
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After hearing that Maya had a congenital heart defect, the searching for answers began! We got paired up with a wonderful cardiologist at Children’s Hospital of Wisconsin where we got answers to our most pressing questions. Throughout my pregnancy, there were many more questions after every fetal echo and I have tried to distill them…
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This is Maya! She is a funny, smart, adorable and strong 18 month old. If you met her today, you would notice her beautiful eyes and her infectious, toothless smile. You would never guess she had to fight for her life multiple times during the first 12 weeks of her life. We found out at…
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