This photo breaks my heart every time I see it. I took this picture two days before Maya needed her third open heart surgery to fix her AV Canal defect. She was born with only three chambers in her heart and only one valve instead of two, the tricuspid and mitral valve. Usually this CHD…
Read More
Every family has a story, and for many, Ronald McDonald House Charities (RMHC) is a beacon of hope during their darkest times. Love knows no bounds, especially when it comes to families facing tough times. In 2018, our family found an unexpected haven at RMHC during our daughter Maya’s open heart surgeries. For 37 days, RMHC…
Read More
These items are things that I have loved from my experience of having four children and one who has Down syndrome. Most things for most babies are good for a baby with special needs but there are definitely some extra things to consider. I am not a proponent for more things, more clutter, more money,…
Read More
If you google “what is Down syndrome” you will be seeing words like disorder, abnormality, disability, and other words that don’t paint a true picture of what this diagnosis means. So yes, Down syndrome is a genetic disorder caused by the presence of an extra copy of chromosome 21. It is a common chromosomal abnormality,…
Read More